ISBN: | 978-5-5085-2995-6 |
High Quality Content by WIKIPEDIA articles! The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is a US-based 501(c)(3) non-profit organization supporting medical research, education and communication for those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP). IFOPA’s mission is to fund research to find a cure for FOP while supporting individuals and their families through education, public awareness and advocacy. IFOPA is governed by a volunteer board of directors which may range in number from 9 to 15, at least one of whom must have FOP. The association`s office is located in Winter Springs, Florida, USA. Office staff consists of the Fundraising and Operations Manager, Communications and Membership Manager, and Accountant.